2021 St. Loius Walk for PKD / October 8-17 / 10-day vertiual event /
Register & donate at walkforpkd.org & search for St. Louis!!!!
The 2021 St. Louis Walk for PKD is virtual with "10 days. One goal." theme. The St. Louis Walk for PKD is taking place from October 8-17. Jean Sommer, the St. Louis Chapter and Walk Coordinator, said, "The Walk for PKD is your opportunity to put your passion to end PKD into action! As our signature fundraising event, 100% of donations made to the Walk will go to critical PKD research to help find treatments and a cure." Take the time today to register a team, register individually, join a team, and/or gather team members to register and donate. WE enourage walkers to wear PKD gear and walk in a different area each day. Please take picutres and post on social media using hashtag #WalkforPKD and other hashtags found on the Walkforpkdcure.org site under the 10-days of activities.
To register or donate, visit: walkforpkd.org and search for St. Louis.
HOW THE VIRTUAL WORKS:
1. Register and donate through walkforpkd.org and search for St. Louis.
2. Then connect with us on facebook: PKD Foundation Facebook page under "Walk Event" and PKD Foundation - St. Louis Chapter Facebook page. This is where the virtual event will take place.
3. Once you are registered to walk, you will be sent e-mails and we will post Walk details and videos on both of our Facebook pages including videos for start line ceremony on October 8, mid Walk on October 13, and finish line ceremony on October 17.
4. Then start fundraising on social media, by sending out text messages or e-mails, and even mail letters.
5. Invite family and friends to join your team and fundraise with you.
6. During the 10 days, please wear PKD gear and walk in a different subdivision each day.
7. The St. Louis Walk for PKD is interactive event. We encourage you to take pictures and post on social media using hashtag #WalkforPKD and other hashtags designated for one of the 10-days activites.
Note: December 31 is the last day for collecting 2021 St. Louis Walk for PKD donations.
ABOUT PKD:
Polycystic Kidney Disease (PKD) is one of the most common, life-threatening genetic kidney diseases. PKD causes uncontrolled growth of fluid-filled cysts in both kidneys, often leading to kidney failure. Once a person has kidney failure, transplant or dialysis are the only options to treat the damage the disease has caused. PKD patients are in urgent need of treatments and a cure.
There are two types of Polycystic Kidney Disease (PKD): autosomal dominant PKD (ADPKD) and autosomal recessive PKD (ARPKD).
1. ADPKD is more common and affects an estimated 600,000 Americans and 12.4 million people worldwide. Parents with ADPKD have a 50 percent chance of passing it on to each of their children. Approximately 10 percent of the people diagnosed with ADPKD have no family history of the disease, with PKD developing as a spontaneous (new) mutation. Once they have it, they have a 50 percent chance of passing it on to each of their children.
2. The less common form, ARPKD affects approximately 1 in 25,000 children WORLDWIDE, and often causes death in the first month of life. Only 70% of children born with ARPKD survive the newborn period and one-third of those who survive will need dialysis or transplantation by the age 10.
ABOUT THE PKD FOUNDATION:
The PKD Foundation is the only organization in the United States SOLELY dedicated to finding treatments and a cure for PKD. It was founded on August 20, 1982. The national office is located in Kansas City, Missouri. The St. Louis PKD Chapter is part of the 60 Chapters across the United States. Visit pkdcure.org for more information about the Foundation and our Chapter.
Our mission is: We give hope. We fund research, advocate for patients and build a community for all affected by polycystic kidney disease (PKD).
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